Even though it has only been 8 days since I have posted last alot has happened in those 8 days.
Monday, we went for Tripps preop visit for his cleft palate surgery. They are also going to be putting ear tubes in and then doing an abr while he is under. We did get some great news (great to me) at the appointment. Since Tripp's cleft is so far back he is not going to make him wear no nos! He had to wear them for a short time after his 2nd jaw distraction and they were horrible, he hated them and just cried the whole time. Since it is so far back there is no way he will get his finger back there, he just is not allowed to have a straw, a paci, or anything long that could get back there to hurt the palate repair.
The next thing is what I consider to be Tripp's biggest accomplishment yet, today is the 2nd day is a row that he has not had any tube feedings!! For us this is awesome news and just shows me that whenever I am ready to give up on it he can show me who is boss. I say this because he had improved but was still not drinking what he should be. So, I did a ton of research and found a more aggressive weaning plan that both Ricky and I were comfortable with. I emailed Tripp's GI doctor about what was going on and the plan Wed. morning, well I guess it doesn't really matter what he thinks about that plan now! God is good :)
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