We are so excited! Tripp isn't quite done with his distraction, but tomorrow night after they distract him for the second time we get to go home! We will be doing the rest of the distraction at home by ourselves. Then we will come in for a check up. Then in around a month he will have to come back in to have a surgery to remove the device from his jaw. This is usually outpatient surgery but we will probably stay one night just because we live so far away.
That will be the last surgery he has to have until around a year old when he will have his palate repaired; they will also put tubes in, undo his tongue, and do an abr while he is under anesthesia that time. And then they very last surgery will be his gtube reversal and this will be just whenever he can eat everything he needs to by mouth. Hopefully everything will go perfectly from here on out and we will be able to stick to this plan :)
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