Every procedure comes with problems. Even though Tripp is still having problems with sleep apnea, I know that we made the right choice when it came to the jaw distraction vs tracheostomy. This is what a mom of a prs baby girl that had a trach instead wrote:
"She is five, just started school in august, and is pretty much the picture of health now. She only suffers from "normal" childhood things, colds, ear infection ect. She received a feeding tube and a tracheostomy when she was one month old, and was never home for more than two weeks before we were back in the hospital with another long infection until she was all most three when she had them removed. "
Constantly being in and out of the hospital for years would be the most distruptive thing for our family, and I am so glad that we chose to do our research and chose distraction instead of just going the easy way with a trach.
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