June 2 & 3, 2011

6/2
Not a whole lot happened on Thursday.  Mainly some preop lab work for his surgery on Friday.  The ENT did come by, at the perfect time (during one of Tripp's episodes where he has trouble breathing and you can hear him rattling louder--these dont happen very often), and decided that as he was being put to sleep the next morning for his gtube surgery that he would do an endoscopy to look at if his airway is being cut off while he is asleep.  This has been done while he has been awake in his bed, but everything changes while hes asleep and without anesthesia its impossible to keep him asleep while doing it.  Tripp would also become NPO at midnight tonight. 

6/3
They were unable to get an IV on him to give him any fluids, so they gave him pedialyte until 3am. His surgery was delayed because they were running late and they didn't take him back until 1245 to the OR. They were able to get him to sleep just fine so the ENT looked down his throat and determined that most of the time he is able to keep a small opening in the back of his throat but there are times where it is completely cut off by his tongue as well.  He said hes not sure but hes probably just getting tired and letting his tongue go completely back.  Because of this he is not safe to go home to sleep at home at the time and he recommeded that he either needs the trach, or the jaw distraction (sorry guys one of the residents had told me before it was extraction but thats wrong). We obviously do not want Tripp to have a trach put in, it was the reason we brought Tripp to this hospital.  Other than this news his surgery went great, they were able to extubate him in recovery, which is always good since with alot of babies this is the hardest part for them.  He came back up to his room and hes getting fluids and fentenyl (4 micrograms/hour) by IV.  When they see signs that he isnt hurting as much they will start to wean the fentenyl and the fluids will start to be decreased when he gets to start to eat again.  The Plastic Surgeon also came by and said that he had talked with the ENT and he has put Tripp on the schedule for the jaw distraction for the 14th (he is out of town next week) but he also said that if somehow he does open his airway enough to come home next week that he would just come home and be taken off of the schedule.  I hope that he does just get better and gets to come home, but I guess we will wait and see because really theres only one person who knows what will happen and its none of us.