May 28, 2011 - May 31, 2011- Who Knows

5/28- 5/30
Well the weekend wasnt very eventful.  Friday, Saturday, and Sunday Tripp seemed to continue to get a little bit better each day, going down some on his oxygen needed and his oxygen rate not going down as it was before.  No one is sure of what really caused it but Sunday night he had a bad night and had to go up on his oxygen and it was apparent that it was a lot harder for him to breathe.  He was this way on Monday as well so the doctors ordered a chest xray, the results were that it was an improvement from his last one on Thursday, so we were still clueless about what caused him to change over night the way he had.  Since this was a holiday weekend the specialist that he needed to see weren't in and since in was not an emergent situation he would be seen the next day. 

5/31
Today Tripp had a hearing test this morning, results are still not back yet.  Then he had his upper gi that was needed before he had surgery for a gtube.  This came back with normal results.  The ENT came by and said that his vocal cords are inflamed and that this may be the reason for the change as it indicates aspiration from acid reflux.  For this we are now starting some prevacid, but results may take around a week because all of the inflamation has to go down first.  Plastics came by to check on him, everything still looks fine from his initial surgery and as of now we are not looking at the jaw extraction.  Most children will outgrow the small jaw and that is what we are hoping for Tripp as this is a pretty invasive surgery and process and he would have to be in the hospital for a few months.  However, this is not totally off of the table he still wanted to consult with ENT before making that decision and see how he progresses while we are here.  Tomorrow we will see the pediatric surgeon to talk about the surgery for the gtube.  On a positive note, once he is done here with all of the procedures and is just waiting to go home, we asked the doctors (this had been mentioned to us at Roanoke so thats why we asked them about it) if he could then be transfered back to Roanoke during this period and they agreed that it would be just fine.  So at least the 3 of us would be in our own home just waiting for the 4th to come home.  So even though we still arent sure of whats going to happen, or what is actually going on with Tripp right now, there is some light at the end of the tunnel (God must of known I really needed that :) ).